We also got the clearance for her to stop using her monitor, she is COMPLETELY cord free. The monitor thankfully never went off due to her heart or lung failure, but it really was a good piece of mind for us though. We are extremely happy to have this disconnected and put away in the corner though.
This is a big week for us, for I will be traveling to Florence on Tuesday with Whitney for the neurologist appointment and then Andy has off Thursday and all three of us will be going back to Florence for a physical therapy meeting. Please keep the prayers coming for this long journey.